Happy Third Birthday, Enfys!
Yesterday, our beautiful Enfys celebrated her third birthday. She has had one heck of a journey to get where she-is today and I am So proud of everything that she is. This time last year we were beginning to feel…
Tomorrow is the start of the rest of his life…
And suddenly you just know it’s time to start something new and trust the magic of beginnings. It’s been a long 14 months, but tomorrow marks the start of the rest of Macsen’s life. He has had such a tough…
A new plan for Macsen?
When the Reception allocation announcement for September arrived on my doorstep the other week, I had no doubt. Macsen had been offered a place at our first choice. The school is never oversubscribed. There are no issues with class sizes. …
5 more appointments to expect with 22q
A few weeks ago, I told you about 5 appointments you could expect with 22q. There were 5 appointments that Enfys has attended in the last 2 years. I also said that those appointments were only the tip of the…
Why I hate filling in forms for Enfys!
Raising children with additional needs is often a hair-raising task with many, many challenges. From the day-to-day living right through to the boring, mundane application forms. I’ve had to fill in Enfys’ nursery application recently and how hard it was. …
Welcome to The Cwtch – Creating a quiet space for an overstimulated child
Welcome to The Cwtch! It’s a corner of our family room that is dedicated to quiet time. It doesn’t matter whether the quiet time is to read, finish jigsaws or just to lounge around on a beanbag watching Netflix. It’s…
5 ways you can help your child with a speech delay
I’ve spoken about the severity of Macsen’s speech delay several times. He has a very difficult time forming the sounds we take for granted. I’m going to be traveling a very similar journey with Enfys over the coming years too,…
Speech Delay & Education
I have concerns regarding Macsen’s ability to cope in a mainstream classroom, even with the type of support in place as outlined above. Suddenly, everything clicks into place. Macsen IS different. He is not an AVERAGE child. His ability to…
5 Appointments to expect with Di George Syndrome
If you had said to me in February 2016 that I would have attended over 60 hospital appointments by February 2018, I would have called you a liar. There’s no way one person can have THAT MANY appointments… is there?…
5 things I didn’t know about raising children with different needs
Being a parent is hard. Whether you’re agonising over how many baths per week is the right amount, or even questioning whether giving your toddler crisps with lunch is acceptable, it’s almost impossible to always feel like you’re doing it…
The A-Z of me – A is for Additional Needs
It was #Blogtober17 that first gave me the idea of an A-Z of me series. For day one, I wrote the ‘A to Z of me’. I figure that now is a good time to come back to it and…
