I’m feeling a bit shit.
I remember being told back in November that this time would come.
I remember being told that once it was all over I would come back to earth with a bump.
At the time, I didn’t believe them… I mean, I wouldn’t be anything other than over the moon, wouldn’t I?
Now, I wish I had paid more attention to what was being said.
I love having Rainbow home. I love the fact that she made it through everything but what a life changing event we have been through.
I find myself in tears sometimes. I generally can’t explain them either.
The pressure of ensuring she thrives at home feels immense.
The pressure of making sure I remember all of her medication is huge.
The pressure of remembering her appointments is massive.
In the last 6 months, we have been through so much.
We were told our baby had a problem with her heart.
We were dismissed when I worried she was in heart failure.
We worried when we were told she was in heart failure.
We were told that she would need open heart surgery.
We kept going for 6 weeks while waiting for surgery.
We handed her over to the surgeons.
We sat by her bedside while forever wondering if we would ever see her awake again.
We thought we were going to lose her.
We were told she has a 22q Deletion Syndrome.
We found out she may have other problems but the full extent may not be known for many years.
We were told that, after 13 weeks and 1 day, we could bring her home.
Now, I’m here, trying to pick myself back up and put myself back together. Trying to, finally, process everything that has happened because at the time, processing everything is the last thing on your mind.
I think it may just take time, to be honest. I don’t think I’m going to find a wonder cure for the way I am feeling.
I am feeling a bit shit…